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公式動画＆関連する動画 [IgG4-RD Explained: From Delayed Diagnosis to Improving Care]
From diagnostic delays to collective action, a woman living with IgG4-RD, a caregiver/advocate and a clinician explore how to advance care for IgG4-Related Disease.
This Amgen-sponsored panel discussion is provided for disease-awareness and educational purposes. Panelists shared perspectives based on their professional, advocacy, caregiver, or personal experience.
0:00 IgG4-related disease panel intro
0:54 What is IgG4-related disease?
3:33 Silvia’s 30-year journey to IgG4-RD diagnosis
7:01 IgG4-RD from an advocate’s perspective
9:00 Growing a global IgG4-RD community
10:12 Overcoming IgG4-RD diagnostic challenges
11:05 The scientific advances in IgG4-RD
12:10 Listening to patient voices in IgG4-RD
14:52 New understanding of what drives IgG4-RD
15:53 Growing awareness & hope in IgG4-RD
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