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公式動画＆関連する動画 [Learn About the Rare Disease Community: Meet Megan Loden and Chris Coates]
#RAREis Global Advocate Grant recipients Megan and Chris both met after being impacted by the same rare disease, Hypertrophic Olivary Degeneration (HOD), a rare brain disease. After learning there was no support and resources for this community, Chris started her own advocacy organization to address the unmet needs. In this video, learn how they are being a lifeline to the HOD community.
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