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公式動画&関連する動画 [Learn About the Rare Disease Community: Meet Deena Chisholm]
Being a rare mom herself, Deena knows first-hand what families go through when receiving a diagnosis and has made it her mission to support those who are impacted by rare diseases. As Director of Research Engagement at the TANGO2 Foundation, she works to support those who are impacted by this rare and genetic disease. Learn more about her goals for the future and how the #RAREis Global Advocate Grant is supporting her mission.
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