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公式動画＆関連する動画 [Learn About the Rare Disease Community: Meet Elle Cole]
Elle Cole—a dedicated mother, caregiver, and advocate—has made it her mission to inspire hope and resilience within the #raredisease community.
Her advocacy journey began when her daughter was diagnosed with #SickleCellDisease (SCD), a lifelong condition that presents significant medical and emotional challenges for families.
Determined to make a difference, Elle has become a leading voice for children with #SCD, working tirelessly to empower parents, raise awareness and advocate for additional treatment options.
Watch as she shares her #RAREis One story of unwavering dedication as she continues to drive meaningful change, ensuring that families navigating SCD have the support, resources and hope they need.
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